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Children and Youth with Complex Cerebral Palsy: Care and Management

Children and Youth with Complex Cerebral Palsy: Care and Management

Laurie Glader, Richard Stevenson

ISBN: 978-1-909-96298-9

Dec 2018

392 pages

Select type: Paperback

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Description

Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others.

Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management.

Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care.  Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.

Author Appointments

Acknowledgements

Preface

Opening Quote

 

1. Overview and Introduction                                               

Richard Stevenson and Laurie Glader

 

2. Functional Assessment and Goals of Management          

Jilda N Vargus-Adams and Andrea L Paulson

 

3. Hypertonia                                                

Darcy Fehlings, Anne Kawamura, Cecilia Lee and

Amber Makino

 

4. Musculoskeletal/Orthopedic Management                      

Mark J Romness and Victor Anciano

 

5. Seating, Mobility, and Equipment Needs 

Christopher D Lunsford and Jonathan Greenwood

 

6. Osteoporosis and Fractures                                              

Steven J Bachrach and Heidi H Kecskemethy

 

7. Feeding and Nutrition                                                       

Valentina Intagliata, Eva Delaney and Mary C Bickley

 

8. Gastrointestinal Issues                                                      

Beate Beinvogl and Munir Mobassaleh

 

9. Overview of Pulmonary and Sleep Disorders in

Children with Complex Cerebral Palsy          

Umakanth Katwa and Sebastian K Welsh

 

10. Speech and Communication                   

John M Costello and Elizabeth N Rose

 

11. Cognitive and Sensory Impairment         

Katheryn F Frazier

 

12.Challenging Behaviors, Sleep and Toileting

Alisa Bahl and Kurt A Freeman

 

13. Mental health in Children and Adolescents with

Cerebral Palsy                        

Kerim M Munir and Ikram Rustamov

 

14. Pain and Irritability                                                          

Julie Hauer

 

15. Seizures and Epilepsy in Children with Cerebral

Palsy   

John R Mytinger and Howard P Goodkin

 

16. Urologic Issues                                                                

Stuart Bauer

 

17. Adolescence and Sexuality                                              

Susan Hayden Gray

 

18. Transition to Adulthood                                      

Kitty O'Hare and Claudio Melo de Gusmao

 

19. Evidence Based Care: A Tool Chest for Helping

Families Navigate Treatment Options           

Lisa Samson-Fang

 

20. Difficult Topics and Decision Making      

Jim Plews-Ogan and Richard I Grossberg

 

21. Through the Eyes of Parents                                           

Michele Shusterman, Carol Shrader and

Jennifer Lyman

 

22. Growing up, Growing Well with Cerebral Palsy

Andrew J Smith, Chelsea Strawser, Benjamin

Schrader, Jaylan Norfleet and Garey Noritz              

 

 

Appendix:  Care Tools for Clinical Practice